Baton Rouge Parents Magazine

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SUPPORT GROUPS

 

 

Ascension Parish Autism Support Group

Affiliated with Baton Rouge Autism Society

(225) 622-0323

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Meeting time/location: Monthly at the Ascension Parish Library-Galvez Branch, Prairieville

The Ascension Parish Autism Support Group offers monthly meetings where parents, relatives, friends, professionals and caregivers exchange ideas and different techniques that work with children with autism. There are guest speakers and lunch or snacks are provided. Children are welcome to attend the meetings.

No fees.


 

Baton Rouge Head Injury Support Group (BRHISG)

(225) 274-4440

www.brhia.homestead.com/supportGroup.html

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Meeting times/locations: Meetings are generally held the first Wednesday of the month from 7-9 p.m. at the Greenwell Springs Library.

 

The support group meeting provides opportunity for people to obtain resource information, learn more about brain injury and network with other survivors and families. The meetings are open to survivors of brain injury, their care providers, family and friends of survivors, health professionals or anyone who is interested in learning more about head injury.

 

Throughout the year guest speakers are invited to present information of interest or help to survivors of brain injury.

 

The BRHISG also plans social outings for members on a monthly basis.

 

No fees.


 

Celiac Kids of Baton Rouge Support Group

(225) 756-7494

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Meeting time/location: Generally held the first Monday of the month at 7 p.m. at the St Thomas More Church Activity Center.

Celiac disease is an intolerance to the wheat protein gluten. The meetings are for the families of children with this disease to help them share information on how to live with it. There is a different activity for the children every month.

 

No fees.


 

CHADD- Louisiana Capital Area Chapter of Children and Adults with Attention Deficit/ Hyperactivity Disorder

www.lacachadd.org

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Meeting time/location: Chapter meetings dealing with parenting, education, and family issues are held from 2:30 - 4:30 p.m. on the fourth Sunday of most months at the Jones Creek Library. 

 

ADDult Support Group meetings are also held at the Jones Creek Library from 7

- 8 p.m. 

 

Meeting schedule varies slightly and is available on the website.

 

The Louisiana Capital Area Chapter of CHADD is a volunteer support and advocacy group. The organization hosts monthly workshops, boasts a large Lending Library and has published a Parent/Teacher Handbook on ADD and Related Disorders which addresses concerns surrounding communication between home and school. 

 

The group objectives are to maintain a support network for parents who have children with AD/HD and adults with AD/HD, to provide a forum for continuing education of parents, professionals, and adults with AD/HD about the disability, to be a community resource for information about AD/HD and to make the best educational experiences available to children with attention disorders so that their specific difficulties will be recognized and appropriately managed within educational settings.

 

Fees

Meetings are free.

Family membership is $45/year. 


 

Down Syndrome Awareness Group (DSAGBR)

(225) 715-4827

www.dsagbr.org

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Meeting time/location: Meetings once a month, either a membership meeting or Board meetings at various locations. All meetings are open to everyone. 

 

DSAGBR’s goals are to provide parent support, to promote a better understanding of Down syndrome to the general public and to work to promote social conditions that allow the full growth and potential of children and adults with Down syndrome and improve their quality of life.

 

Annual Events

Buddy Walk

 

No fees.


 

East Baton Rouge Parish Exceptional Student Services (ESS) Advisory Council

(225) 929-8692

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Meeting Times/location: Four times per year on the first Monday of the month from 6-7:30 p.m. at the Instructional Resource Center (IRC) next to the EBRP School Board on S. Foster Drive 

 

The ESS Advisory Council is a group of parents, teachers, administrators and concerned citizens who meet to discuss the educational needs of special needs students in the East Baton Rouge Parish School System. Topics of interest to families of students with exceptionalities are presented as well as opportunities to inquire about services provided. The meetings are open to anyone. Fundraising is not necessary as the meetings are provided by the East Baton Rouge Parish school system.

 

No fee. 


 

Epilepsy Foundation of Louisiana

Baton Rouge Support Group
(800) 960-0587

www.epilepsylouisiana.org

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Meeting Time/location: Meets on the third Thursday of the month from 7-8:30 p.m. at The Neuromedical Center on Park Rowe Avenue.

 

The support group wants to ensure that people with seizures are able to participate in all life experiences and will prevent, control and cure epilepsy through services, education, advocacy and research. Fundraising efforts include the Seize the Day walk and calendar.  


 

Greater Baton Rouge Autism Society of America

(225) 273-3984

www.autism-society.org

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Meeting time/location: Generally held on the second Saturday of the month from 3-5 p.m. at the Jones Creek Library. 

 

The Greater Baton Rouge Autism Society supports families of individuals with autism spectrum disorders and raises awareness of all aspects which affect these families, including: living with, educating, and caring for a person with an autism spectrum disorder.


 

Latebloomers of Baton Rouge

www.groups.yahoo.com/group/brlatebloomers

 

Latebloomers is an online support group that holds monthly meetings, although support is always available. The online nature of the group makes it more accessible for parents who can't get away without their children. When a parent has an issue, they can post at any time. The group discusses personal experiences about schools, doctors and therapists. The group also functions as a place to vent every day frustrations. There are currently 136 members in the Baton Rouge and surrounding area, and every member is a parent of a child with a disability.  Most children have developmental delays of some sort, and Latebloomers is not disability specific.  No matter if the child has a diagnosis or not, they are allowed to be members.

Professionals are not allowed to become members of the group, allowing parents to freely express their opinions about the services in our area without fear of repercussions.



Louisiana Pediatric Cardiology Foundation (LPCF) Support Group

 

(225) 572-5885

www.lpcf.com

julie_gill_arton@msn.com 

 

Meeting times/location: Monthly support group and annual family picnic. Call or email for further information. 

 

The Louisiana Pediatric Cardiology Foundation provides support for children and their families affected by congenital heart defects and diseases. Congenital Heart Defects & Disease not only affect the CHD child, but change the dynamics of the entire family.  LPCF's monthly support group get-togethers offer a casual family environment for socializing and encouragement. 

 

Annual Events

Tennis tournament to help raise money to help the children suffering from cardiac disease in our community with sponsorship opportunities.   



 

McMains Children’s Developmental Center Support Groups

(225) 923-3420

www.mcmainscdc.org

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Meeting times/locations: Parent  support group, sibling group and social skills group

meetings are held at the McMains Children’s Center on an as needed basis.

 

The McMains Children’s Developmental Center is an outpatient facility for children of all ages with cerebral palsy, developmental delays and/or learning disabilities which provides physical, occupational, speech and educational therapies. There are support groups for parents and young adults and social skills groups for children.

 

Fees charged on a sliding fee scale.


 

Spina Bifida of Greater New Orleans (SBGNO)

(504) 737-5181

www.sbgno.org

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Meeting time/location: Various activities throughout the year

 

SBGNO is a non-profit organization that offers education and outreach to individuals with spina bifida and their caregivers. They offer a free annual summer day camp for those with spina bifida through 21 years of age. They send out quarterly newsletters as well as E-blasts to disseminate information and opportunities. They also offer social networking opportunities and assist with individuals interested in attending the yearly National Spina Bifida Conference.

 

No fees.

 

Annual Events

Ghost Bowl-a-Thon in October

Turkey Day Race in New Orleans on Thanksgiving Day

 

Last Updated ( Thursday, 06 May 2010 12:34 )
 
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